Lilypie Second Birthday tickers

Lilypie Second Birthday tickers

Friday, February 25, 2011

Duke, Part 1

Let me begin with the fact that I have been avoiding writing this blog post because I want my otherwise healthy little boy to be just that - completely healthy. Unfortunately, Lucas is not completely healthy and it is a medical mystery what might be wrong with him. So, we went to Duke University Hospital last week to begin the journey down the diagnostic road to figure out why his bloodwork is awry. When Lucas was 3 weeks old he was hospitalized for poor weight gain (due to his tied tongue and inability to latch properly to eat) and a virus. Since that visit we have been doing monthly bloodwork (sometimes more often) to monitor those pesky liver enzyme levels that just won't go down. We were hopeful that the pediatric gastroenterologist would look at Luke and his bloodwork history and say, "He looks healty, these elevated liver enzyme levels must be normal for him, no need to worry, sorry you wasted the gas coming to Duke". Oh we were wrong.

So...we have done more bloodwork and a repeat abdominal ultrasound and are patiently waiting for all of the results. This is not a game parents like to play...wait and see. Especially because Duke has an online patient information and we can see his bloodwork results as they come in but have little idea what they mean. The Dr. did tell us to proceed as normal and hopefully we will get some answers at his next appointment.

Proceeding as normal....here is a little video of Lucas eating his first meal of rice cereal. He didn't like it :/

1 comment:

  1. hey girl!!! i'm so sorry to hear about your "waiting period"...and i know how terrifying it can be! we went down that road for 2 months with Noah thinking he had pyloric stenosis...and wow its tough. BUT also remember sometimes its in the waiting time God reveals things to you...and there is a purpose. we will be praying fervently for your family and that you will still get the "all is well" report at the end!!! let me know if i can do anything to help :)
    AND...i would spit rice cereal back up too! ha just doesn't look good ;) we just ended up with some really rough BM's and went on to veggies and said forget it! hehe
    love ya girlie!
    Ashley

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